MND: the 1,000 Day Disease

MND: the 1,000 Day Disease

Hello World. My name is Simon.

In June 2023, I was diagnosed with Motor Neurone Disease. I was 40 years old.

People with MND typically live for 2 to 3 years following their diagnosis. That's about 1,000 days.

I've created this blog to write about my experience living with and fighting this disease.

Please subscribe if you would like to receive email updates about new posts on this blog.

Thanks for stopping by.

Blog | Memorial | Dedications | Fundraising

Day #793: Thank you and farewell
It is with great sadness we post Simon’s final update on this blog. On the afternoon of Friday 22nd August 2025, Simon decided that this wretched disease had taken everything it would from him and, in a beautiful and serene spot in Switzerland, surrounded by his family, he wrested control