Simon 
I have something amazing to show you today. Before I do, I want to say a huge thank you to everyone who donated to our fundraising campaign. Last week, it hit its target. This is down to the heartwarming generosity of hundreds of people – many of whom know us well – but many we’ve … Read more
Well, I made it. I’m officially in the top 66% of survival stats for people with Motor Neurone Disease, having conspicuously not died during the first year. I wonder if the King will send me a badge? I might order this one just in case he’s too busy fighting his own life threatening illness. I’d … Read more
My lovely Occupational Therapist (OT) came over for a visit yesterday. She advises us on adaptations we need for our house, such as accessible bathrooms and ceiling mounted hoists that will help me flop gracefully between pieces of furniture in the future. She’s moving on to a new role, so this would be the last … Read more
Just a poem today, folks. Rob Burrow, a top-flight Rugly Leauge player who was diagnosed with Motor Neurone Disease in 2019, sadly died yesterday. He was 41 years old. Together with his friend Kevin Sinfield, Rob raised millions of pounds for clinical research and patient support services. He waved the flag for all of us … Read more
Last week, I stepped into a Time Machine to visit my MP. Off I zipped, back to the Victorian age to meet the (in?)famous Sir Jacob Rees-Mogg; everyone’s favourite MP from the 19th century. He just so happens to represent us here in Northeast Somerset. Before you ask, yes, we do have electricity in the … Read more
“Questions always start with a what, when, where, or why!” proclaimed our six-year-old son during dinner last week, emphasising each word with a fish finger wobbling in his hand. “Really?” I said, immediately breaking this new rule. “Who told you that?” asked my wife, gently removing one of his feet from the dining table, only … Read more