Life with MND

Day #734: Two Year Diagnose-iversary

Simon

30 Jun 2025

Sunday 22nd June marked two years since I was diagnosed with motor neurone disease.

To mark the occasion, rather than offer my usual text-based ramblings, I thought I'd share some video-based ramblings instead.

As always, I love to read your comments down below.

Also as always, I nattered on and completely forgot to cover the most important part of my video agenda - the Thank Yous!

These are so important to me that they deserve their own post, so I will be back soon!

Stay healthy everyone.

Simon

Day #793: Thank you and farewell

It is with great sadness we post Simon's final update on this blog. On the afternoon of Friday 22nd August 2025, Simon decided that this wretched disease had taken everything it would from him and, in a beautiful and serene spot in Switzerland, surrounded by his family, he

Day #761: Five Dark Humour Moments

If you saw my last video, you may remember how I forgot to thank the many wonderful people in my life who have helped me through the course of this crappy disease. Well, it turns out that a lot of you have been rather fantastic, so I’m still working

Day #648: An Ode to Diazepam

Today, a poem in honour of one of my many Marvellous Medicines: Diazepam, otherwise known as Valium (or Simon’s chill pills). I dedicate this silly verse to my wonderful friend Darren, who is running the Brighton marathon on Sunday to raise money for the MND Association. He’s so

Day #644: Perspective

What colour is the shoe pictured above? With complete confidence, I'd say it is grey with mint-green coloured laces. After all, what could be simpler than describing the colour of an everyday object. With all of the complex and contentious things to argue about out right now, surely

Read more

Day #793: Thank you and farewell

Day #761: Five Dark Humour Moments

Day #648: An Ode to Diazepam

Day #644: Perspective