Simon

It is with great sadness we post Simon’s final update on this blog. On the afternoon of Friday 22nd August 2025, Simon decided that this wretched disease had taken everything it would from him and, in a beautiful and serene spot in Switzerland, surrounded by his family, he wrested control of the fight away from … Read more

If you saw my last video, you may remember how I forgot to thank the many wonderful people in my life who have helped me through the course of this crappy disease. Well, it turns out that a lot of you have been rather fantastic, so I’m still working on that post! I’d like to … Read more

Sunday 22nd June marked two years since I was diagnosed with motor neurone disease. To mark the occasion, rather than offer my usual text-based ramblings, I thought I’d share some video-based ramblings instead. As always, I love to read your comments down below. Also as always, I nattered on and completely forgot to cover the … Read more

Today, a poem in honour of one of my many Marvellous Medicines: Diazepam, otherwise known as Valium (or Simon’s chill pills). I dedicate this silly verse to my wonderful friend Darren, who is running the Brighton marathon on Sunday to raise money for the MND Association. He’s so close to his target. Please spare a … Read more

What colour is the shoe pictured above? With complete confidence, I’d say it is grey with mint-green coloured laces. After all, what could be simpler than describing the colour of an everyday object. With all of the complex and contentious things to argue about out right now, surely on this matter of shoe colour we … Read more

Why hello there – it’s been a while. When I started this blog, I intended to write a post every week or two.  As you can see, I’m smashing that target. My recent radio silence is not due to a lack of ideas or disinterest in the blog.   I still very much enjoy writing to you.  The problem … Read more

For those of you who liked the first one – here’s the next episode of the 1,000 Days Podcast. In this 2nd episode, we actually do the thing we were meant to do in the 1st episode: talk through my Desert Island Discs. I can’t include all the music in one audio file without breaking … Read more

One of the silver linings of going through a terrible life event – such as getting diagnosed with Motor Neurone Disease – is that truly remarkable people show up out of nowhere to help you out. My friend Mark is one of these guys. We met a couple of years ago when our kids started … Read more

A few years ago, I worked for BT in Bristol and made some wonderful friends during my time there. Since my diagnosis they have rallied around me and want to help in any way they can. Next week, on 3rd October, an incredible crew of 8 former colleagues are going to trek all day, come … Read more

Stephen Hawking was an exceptional fella.   Aside from dreaming up theories on black hole radiation, he also managed to live for 55 years with a condition that snuffs most people within 3. How did he do it?   Well, I’m here to tell you. I’m here to tell you that nobody really knows.    However, in the … Read more