Life with MND
It is with great sadness we post Simon's final update on this blog. On the afternoon of Friday 22nd August 2025, Simon decided that this wretched disease had taken everything it would from him and, in a beautiful and serene spot in Switzerland, surrounded by his family, he
Life with MND
If you saw my last video, you may remember how I forgot to thank the many wonderful people in my life who have helped me through the course of this crappy disease. Well, it turns out that a lot of you have been rather fantastic, so I’m still working
Life with MND
Sunday 22nd June marked two years since I was diagnosed with motor neurone disease. To mark the occasion, rather than offer my usual text-based ramblings, I thought I'd share some video-based ramblings instead. As always, I love to read your comments down below. Also as always, I nattered
Life with MND
Today, a poem in honour of one of my many Marvellous Medicines: Diazepam, otherwise known as Valium (or Simon’s chill pills). I dedicate this silly verse to my wonderful friend Darren, who is running the Brighton marathon on Sunday to raise money for the MND Association. He’s so
Life with MND
What colour is the shoe pictured above? With complete confidence, I'd say it is grey with mint-green coloured laces. After all, what could be simpler than describing the colour of an everyday object. With all of the complex and contentious things to argue about out right now, surely
Life with MND
Why hello there - it’s been a while. When I started this blog, I intended to write a post every week or two. As you can see, I’m smashing that target. My recent radio silence is not due to a lack of ideas or disinterest in the blog.
Life with MND
For those of you who liked the first one - here's the next episode of the 1,000 Days Podcast. In this 2nd episode, we actually do the thing we were meant to do in the 1st episode: talk through my Desert Island Discs. I can't
Life with MND
One of the silver linings of going through a terrible life event - such as getting diagnosed with Motor Neurone Disease - is that truly remarkable people show up out of nowhere to help you out. My friend Mark is one of these guys. We met a couple of years
Life with MND
A few years ago, I worked for BT in Bristol and made some wonderful friends during my time there. Since my diagnosis they have rallied around me and want to help in any way they can. Next week, on 3rd October, an incredible crew of 8 former colleagues are going
Life with MND
Stephen Hawking was an exceptional fella. Aside from dreaming up theories on black hole radiation, he also managed to live for 55 years with a condition that snuffs most people within 3. How did he do it? Well, I’m here to tell you. I’m here to tell you
Life with MND
Last week, I stepped into a Time Machine to visit my MP. Off I zipped, back to the Victorian age to meet the (in?)famous Sir Jacob Rees-Mogg; everyone’s favourite MP from the 19th century. He just so happens to represent us here in Northeast Somerset. Before you ask,
Life with MND
“Questions always start with a what, when, where, or why!” proclaimed our six-year-old son during dinner last week, emphasising each word with a fish finger wobbling in his hand. “Really?” I said, immediately breaking this new rule. “Who told you that?” asked my wife, gently removing one of his feet